By Bryan Rosner on Apr 24, 2012 in Conferences & Events, Politics & Activisim, Research, Supplements, Testing & Diagnosis, The Recovery Process, Treatments | comments(2)
Let Dr. Burrascano tell you how to “Put Lyme behind you.” A 2-DVD set brought to you by LymeDisease.org (formerly CALDA) and Gordon Medical Associates. Buying this special DVD set from us will also get you the special bonus: a 1-year FREE membership to LymeDisease.org, featuring the quarterly “Lyme Times” periodical mailed to your doorstep, a member’s only area, and many other benefits. Order your copy of this DVD set today or learn more here.
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By Bryan Rosner on Jan 25, 2012 in Politics & Activisim | comments(0)
Don’t miss this letter written a week ago by 3 members of congress, denouncing the old chronic Lyme guidelines which do not acknowledge the existence of chronic Lyme disease:
http://wolf.house.gov/uploads/ECRI.Institute.Lyme.1.18.12.pdf
The authors of the letter are Chris Smith, Frank Wolf, and Chris Gibson, all members of United States Congress.
By Bryan Rosner on Dec 10, 2010 in Politics & Activisim | comments(0)
A couple days ago, an article denouncing the existence of chronic Lyme disease appeared in the Chicago Tribune. The article has been widely read. I feel this is a good time to re-post an article I wrote in 2008 on the existence of chronic Lyme disease. Read both articles and decide for yourself:
Chicago Tribune Article: http://www.chicagotribune.com/health/ct-met-chronic-lyme-disease-20101207,0,1251072,full.story
My article: http://www.lymebook.com/chronic-lyme-disease-science
By Bryan Rosner on Jun 15, 2010 in Politics & Activisim | comments(0)
Looking for a unique perspective on Lyme disease? Try picking the brain of an anthropologist who himself recovered from chronic Lyme.
That is the theme of the newest Lyme disease book on the market: Healing Lyme Naturally: History, Analysis and Treatments, by Wolf Storl.
Learn more about the book here or purchase it here.
By Bryan Rosner on Apr 6, 2010 in Politics & Activisim | comments(0)
Have you heard the hype and conspiracy theories about Plum Island (that this was the origination of Lyme disease, created by irresponsible [or worse] US Government employed scientists)?
Well, here are a few studies that prove that tick-borne diseases were in fact studied in depth at Plum Island, right around the same time period (early 90’s) as Lyme disease began to take off. You decide what happened…
http://www.lymebook.com/plum-island
By Bryan Rosner on Mar 17, 2010 in Politics & Activisim | comments(0)
The Minnesota Medical Practice Board reluctantly agreed to look the other way when Lyme doctors prescribe “long term” antibiotics for Lyme disease. Does this mean Lyme patients will be flocking to MN for Lyme treatment now? At least it is progress in the right direction…
http://presspubs.com/articles/2010/03/16/vadnais_heights_press/news/doc4ba0153b5eec0480200174.txt
MINNEAPOLIS — It was a bitter pill to swallow, but members of the Minnesota Medical Practice Board agreed to look the other way when it comes to disciplining physicians who treat chronic Lyme disease with long-term antibiotics.
The resolution circumvents legislation that would protect physicians who prescribe long courses of antibiotics for persistent Lyme patients. At a House committee hearing Feb. 17, a bill by Rep. John Ward (DFL-District 12A) was laid aside to give the state board a chance to find a non-legislative solution to the treatment issue.
The compromise barely passed by a 8-6 vote at the board’s monthly meeting March 13. It basically reads that in the interest of allowing time for science to resolve the issue, the Minnesota Board of Medical Practice (MBMP) voluntarily will take a five-year moratorium on the investigation, disciplining or issuance of corrective action based solely on long-term prescription or administration of antibiotic therapy for chronic Lyme disease.
By Bryan Rosner on Oct 25, 2009 in Politics & Activisim | comments(0)
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A patient-driven grassroots project of P.A.N.D.O.R.A. in partnership with
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An Open Letter to the Lyme Disease Community Stakeholders
Re: Clarifying the goals of the NeuroEndocrineImmune (NEI) Center™ and the Inclusion of Lyme Disease
Dear Friend in the Lyme disease Advocacy Community: Continued
By Bryan Rosner on May 1, 2009 in Politics & Activisim | comments(2)
In one of the cornerstone moments of Lyme disease politics over the last decade, the connecticut house of representatives passed a bill which allows physicians to diagnose chronic Lyme disease and treat it with long term antibiotics.
According to the Connecticut Post:
Thursday the state House of Representatives took a strong stand on the issue. In a 137-0 vote, members passed legislation to reassure doctors they will not face retaliation if they choose to diagnose chronic Lyme disease and treat it with long-term antibiotics.
Source: http://www.connpost.com/ci_12267343
This will hopefully be the first domino to fall in what will likely turn out to be a series of wins for chronic Lyme treating physicians and patients. I’ve written about this topic before and am glad to see this development!
Bryan Rosner
By Bryan Rosner on Feb 12, 2009 in Politics & Activisim | comments(0)
In February, 2009, Journal of the American Medical Association (JAMA) published a commentary by John D. Kraemer and Lawrence Gostin which I feel is off base. The main attribute that is incorrect is their assumption that ILADS political challenge to IDSA was based on political manuevering. There is a huge spectrum of science that proves the existence of chronic Lyme disease. The reason the IDSA guidelines are being challenged is that they are innaccurate, not that there is a political conflict of interest. You must pay to access the JAMA article however I did find a version (not sure if it is legal?) that someone posted on their website. http://www.mimosabridalaz.com/Science%20Politics%20and%20Values.pdf
When will this end.
Bryan
—–
Abstract:
Science, Politics, and Values
The Politicization of Professional Practice Guidelines
John D. Kraemer, JD, MPH; Lawrence O. Gostin, JD
JAMA. 2009;301(6):665-667.
The Infectious Diseases Society of America (IDSA) issued updated clinical practice guidelines in 2006 for the diagnosis and treatment of Lyme disease.1 Within days, the Connecticut attorney general launched an investigation, alleging IDSA had violated state antitrust law by recommending against the use of long-term antibiotics to treat “chronic Lyme disease (CLD),” a label applied by advocates to a variety of nonspecific symptoms for which frequently no evidence suggests the etiologic agent of Lyme disease is responsible. The IDSA was forced to settle the claim to avoid exorbitant litigation costs, even though the society’s guidelines were based on sound science. The case exemplifies the politicization of health policy, with elected officials advocating for health policies against the weight of scientific evidence.
The Antitrust Investigation of IDSA
Although untreated or inadequately treated Lyme disease can progress to cause neurological complications and arthritis, there is no evidence the… full text: http://www.mimosabridalaz.com/Science%20Politics%20and%20Values.pdf
Author Affiliations: O’Neill Institute for National and Global Health Law, Georgetown University, Washington, DC.
By Bryan Rosner on Feb 4, 2009 in Politics & Activisim | comments(0)
This is a major step in the right direction. A new bill would allow long term antibiotic treatment for chronic Lyme disease. I’m not sure when or how it is being voted on but just to have a bill like this in existence…what a victory…read more… Continued
By Bryan Rosner on Feb 4, 2009 in Politics & Activisim | comments(0)
I met this doctor at 2008 ILADS conference and he is top notch. His blog is one of the very best sources of information I’ve ever seen in the Lyme community. Apparently he is teetering on the edge of the ILADS vs. IDSA debate and it has become a legal issue for him – he is being investigated by his state medical board.
I urge ALL OF YOU to support this doctor in whatever way you can, be it financially, politically, writing letters, or contacting relevant organizations and/or spreading the word.
We are living in dark, dark times. It almost feels like a bad dream – a nightmare. I hope very much that I live to see the day when Lyme doctors are vindicated.
Here’s the link:
http://tinyurl.com/help-llmd
It is with a sad heart that I go to sleep now.
Bryan Rosner
By Bryan Rosner on Jul 2, 2008 in Politics & Activisim | comments(1)
Hi folks,
The piece on the Lyme controversy airs Thursday morning on Good Morning America , ABC TV.
> PLEASE DISTRIBUTE:
>
> FROM DR. BRANSFIELD
>
> Hi,
> The movie Under Our Skin and the book Cure Unknown have
> awoken interest in the Lyme disease debate.
> Good Morning America will be showing a news story on the
> Lyme disease controversy Thursday morning between 7:30 and
> 8:00 AM.
> This came up on short notice and I was filmed late
> yesterday. Someone from the opposing IDSA school of thought was also
> filmed in the Washington area.
> Best,
> Bob
> Robert C Bransfield, MD, DFAPA, PC
> 225 State Route 35
> Red Bank , NJ 07701
> Phone 732-741-3263
> Fax 732-741-5308
> Email bransfield@comcast. net
> Website www.MentalHealthand Illness.com
By Bryan Rosner on Jun 13, 2008 in Politics & Activisim | comments(2)
Dr. Jones, a prominent and well respected pediatric Lyme Literate Medical Doctor (LLMD), continues to battle the state medical board for the right to treat Lyme patients.
His legal battles have been ongoing and brutal. He releases various press statements to alert his supporters of the latest progress. This blog post shares one such press statement.
Please do what you can to support Dr. Jones, who is a hero.
Continued
By Bryan Rosner on May 4, 2008 in Politics & Activisim | comments(9)
In this post we will look at Post Lyme Syndrome – is it real or not? First, a little background. Current antibiotic guidelines set forth by the Centers for Disease Control are vastly inadequate and based on antiquated, inaccurate, and unreliable data.
While some people do get well by following these guidelines, a significant percentage do not. Many people remain sick despite a two or three week course of doxycycline or penicillin—the length and choice of antibiotic therapy which the Centers for Disease Control dogmatically and ignorantly insist is adequate treatment. Recent estimates suggest that up to 30% of Lyme Disease cases do not get resolved after following these CDC guidelines.
Continued
By Bryan Rosner on Apr 10, 2008 in Politics & Activisim | comments(0)
The IDSA (Infectious Disease Society of America) does not recognize the existance of chronic Lyme disease and is hostile to its sufferers. ILADS (International Lyme and Associated Diseases Society) is the main advocacy group established to oppose the IDSA and help those suffering from chronic Lyme. In its latest move, the IDSA has declared war on ILADS. To read more about this battling, see an excerpt from the 2008 Lyme Disease Annual Report. You can help! Read this press release…
Continued