Lyme Disease Association of Australia
By Bryan Rosner on Feb 24, 2009 in Geographic Incidence
Lyme Disease Association of Australia Inc.
An official Lyme Disease Association of Australia has been launched. Our mission:
1. To raise awareness of Lyme disease and other tick-borne Illness in Australia.
2. Facilitate better testing and treatment.
3. Educate doctors and other health professionals about Lyme in Australia.
4. Use the media to alert the public about Lyme in Australia.
5. Collate personal stories which will bring pressure to bear on the Health Department who currently claim there is no Lyme in Australia.
6. Highlight the probability that Lyme may be the actual cause of many serious health problems including, Parkinson ’s disease, ALS, (Lou Gehrig’s Disease), Motor Neurone Disease, Multiple Sclerosis, Fibromyalgia and M.E./Chronic fatigue Syndrome.
7. Invite professional people to support us and join this association.
Our founder, Mualla Akinci is extremely capable and has the following qualifications:
A PhD in neuro-pharmacology, Masters in hematology and honors in Immunology and has a pharmacy practice in Redfern. She was a post doctoral fellow at the Garvan Institute of Medical Research and worked in collaboration with scientists at Walter and Eliza Hall Institute in Melbourne, and at the Peter McCallum Cancer institute. Prior to her husband contracting Lyme in 2007, he worked in the film industry and has many contacts in film and television.
We will enhance the work already done by T.A.G.S. and others. We believe that if we all pull together we can bring huge improvements to the current Lyme situation in Australia.
We invite all Australian Lyme patients, friends and family of Lyme patients, doctors and health professionals to join this wonderful group and add your voice to publicizing the reality of Lyme in Australia.
As a registered charity, there will be a small fee of perhaps $5 for pensioners and $10-15 per annum for those on regular incomes to cover our costs. We will also accept donations which will be tax deductable.
What we need.
1. Someone who can set up a webpage for the association.
2. A President.
3. Vice President.
4. Secretary.
5. Treasurer.
We welcome all suggestions and look forward to your comments. Please forward this email to other Lyme patients and Lyme groups.
Rosemary Trudeau.
www.au.groups.yahoo.com/group/LymeOz
On Apr 5, 2009, Alana said:
Can anyone help with info on Lyme Diseaes in Australia…there is no help from doctors etc….does anyone know a doc or researcher that may be able to help me?
On May 19, 2009, Lesley said:
Hi Alana
A good place to find up to date information on Lyme and other tick-borne diseases is on the International Lyme and Associated Diseases (ILADS) website. It’s a US organisation, but it can also provide information regarding Lyme-literate MDs in other countries. Dr Burrascano’s ‘Diagnostic Hints and Treatment Guidleines for Lyme and Other Tick-Borne Diseases (2008)’ - also on the ILADS site - is an excellent source of information for patients and doctors alike. You could also join Eurolyme, which is a Yahoo group - you’ll find lots of support and information there from people who have Lyme.
It’s great to hear awareness of these diseases is being raised in Australia. I’m in the UK and have been ill with Lyme for years, repeatedly undiagnosed and misdiagnosed by the NHS. Fortunately I found a Lyme-literate MD in the UK last year, and I’m finally getting the right type and length of antibiotic treatment.
On May 27, 2009, T said:
Alana could u please post any doctors if u find them, i will do the same.
On Aug 18, 2009, dagmar said:
hi……where are the contact details…. would love to join the org. pls email me
On Oct 5, 2009, Lou said:
Ask at AussieLyme yahoo group or LymeOz as members there are organising the LDAA. I have links on my site to find it easily. http://www.lymegreenaustralia.blogspot.com
They have a Dr list also if you join the chat.
On Jul 26, 2010, Sandra Smith said:
sorry for your pain Mualla my nephew has been suffering from a tick bite since 1997 at Coffs Harbour he is the same age as your husband My nephew is very ill and we are now hopeful that with your involvement Governments and the medical proffession may become more active in helping suffers of lyme disease get the treatment they deserve. for your information Graham Ross Gardening Clinic did a talk on Lyme in Australia & has cases that he knows of himself having being bitten by ticks although he received the antibiotic treatment because he insisted from his GP. Others have not because of Government policy. Interesting he says that he does not trust the Government to do anything as he has personal experience You may find this podcast on his website.
insofar as Employers Mutual sending Karl to Dr Slezak - ive worked in that workers compensation arena and for years insurance claim officers have send their work to Dr Slezak as an insurance company doctor, he is an occupational physcian with no qualifcations regarding Lyme, that we are aware of.
There are also WorkCover guidelines that state the Insurer must firstly ask Karl’s nominated treating doctor for the medical information and if they do not get a reply within 10 days IT IS ONLY THEN they can refer onto an Independent Medical Examination , but only with the speciality of that doctor being the same as the workers treating doctor.
Has the WorkCover Agent/Insurance Company complied with those WorkCover guidelines???
If I can assist in any way please do not hesitate to ask.
regards Sandra
On Jul 29, 2010, Melitta Marr said:
Hi Brian and others,
Thank you for posting information about the Lyme Disease Association of Australia on your website - we really appreciate the exposure so we can hopefully help others with Lyme Disease in Australia. The information you have posted has been updated, so I will contact you personally and send the latest information in relation to the LDAA.
The web address is http://www.lymedisease.org.au
We are still looking for a secretary and treassurer if anyone is interested in helping out.
We are organising a fundraiser in September as well, so please visit the website for further information or for anything else in relation to Lyme disease in Australia
Kindest regards,
Melitta (vice president LDAA)