$14.95 for the 2008 Lyme Disease Annual Report (shipped to you by snail mail) and with your order, at checkout, you can download the FREE E-Book I wrote entitled 9 Immune-Supporting Supplements Every Lyme Sufferer Should Know About. You get the book and E-Book for $14.95. Also, for my blog readers, I’m offering free shipping! Enter coupon code frshp2008 during checkout and your grand total is only $14.95. Order now or learn more.
I recently made a video on the connection between Lyme disease and mental illness, and I’ve posted that, along with an excerpt from The Lyme Autism Connection, here:
Lyme Disease and Mental Illness – Bipolar, Schizophrenia, OCD
When I wrote my book entitled The Top 10 Lyme Disease Treatments, and included a chapter on magnesium deficiency (see the Table of Contents), some people questioned the veracity of my claim that magnesium deficiency is related to Lyme infection. Well, I’ll now share some evidence.
The date is 1997 and the place is Romania, at the Department of Clinical Immunology, University of Medicine and Pharmacy. It was seen that not one, but 3 patients had concurrent magnesium deficiency and Lyme disease, and that furthermore, the patients failed to respond to antibiotics unless magnesium deficiency was addressed first. I’ll let you read the article for yourself:
Full article: http://www.john-libbey-eurotext.fr/en/revues/bio_rech/mrh/e-docs/00/03/FD/D1/article.phtml
Excerpted Key Points:
In June 1997 we had under observation a 26‐year‐old man who came to the hospital for articular pain localized in both knees, cephalea, evening subfebrility starting 10 days before. During this time interval, the patient saw his family doctor who prescribed him oral anti‐inflammatory, antipyretic medication, as well as bed rest. As his general status did not improve, he was referred to the hospital with the diagnosis of rheumatoid arthritis. At the objective examination, performed in the ambulatory service, he was pale, subfebrile, sweating, with discrete splenomegaly. History revealed acute endogenous uveitis, treated with retro bulbar injections with cortisone and atropine. Laboratory examinations showed moderate anemia (Hb ∓ 11.4 g\dl; Hct ∓ 34.4%) and leukocytosis of 9.9 K\ìL. A low serum magnesium concentration was also found ‐‐ 1.21 mEq\L (14.7 mg\L). We confirmed the presence of uveitis and arthritis and proposed the continuation of anti‐inflammatory therapy associated with antibiotherapy for 7 days. After another 10 days, the patient came again, complaining of flu‐like phenomena and having an erythematous area of approximately 6 cm on the anterior face of the thigh, with satellite inguinal adenopathy. The clinical and laboratory aspects were suggestive for Lyme disease (table I and II). Read the full article
We at Lymebook.com created a page to announce the release of a new book on Lyme diet by a naturopathic physician, Dr. Nicola McFadzean, ND. Visit this page to see the cover and some release details. Stay tuned.
We are working on getting together some information on Lyme disease in the spanish language. Connie Strasheim, author of Insights Into Lyme Disease Treatment, is bilingual, and has put together this rough draft of information. We hope to expand on it and possibly even create / translate books in spanish for the spanish-speaking population. Here is what we have so far:
Informacion de Lyme Disease en Espanol, Spanish
Ok, so what does this have to do with Lyme disease? Nothing. I am experimenting with a new Works in Progress section of the website in order to test new book ideas. I injured my achilles tendon last year and found some incredible exercises to heal the problem; I am pretty excited about the success I had (after seeing several useless doctors) so am considering writing a small book on the topic. Before I do, however, I want to float the idea to an internet audience and see what they say. You can read what I have so far on the topic of healing achilles injuries with eccentric exercises.
I am always excited to see people with conventional scientific qualifications (e.g. letters behind their name) write about the legitimacy of Rife technology. Someone just forwarded me this PowerPoint Presentation, put together by Holly Ahern, Associate Professor of Microbiology at Adirondack Community College. She gave this presentation on Dec. 2, 2009 at the Saratoga Springs Library for the Adirondack Lyme Disease Foundation. Link: http://lymebook.com/Rife-Microscope-Holly-Ahern.ppt .
Apparently Anthony Holland, who is a professor at Skidmore College, was also at the Dec. 2 meeting. He made this video: http://video.google.com/videoplay?docid=166985105043992526&hl=en .
My research is continually leading me to biofilms. I have a lot to say on this topic but until I get my thoughts more organized, I’ll just be sharing bits and pieces. Here is a great overview of the biofilm problem by Dr. Alan McDonald:
http://www.molecularalzheimer.org/files/Biofilm_New_Haven_ppt_Read-Only_.pdf
Lyme sufferers already have reason enough to look for self employment – the flexibility, autonomy and (sometimes) work-at-home benefits are often the only conditions under which a chronically ill person can consistently bring home living wages. Pre-planned corporate schedules and the rigor of a 9 to 5 work day are usually too much for the Lyme sufferer and can lead to unemployment (and if you are lucky, disability benefits).
This is why I believe Morris Rosenthal’s web page on starting a new business and making a living may be valuable to some readers who have been considering, or should be considering, alternative means of bringing home a paycheck. If it isn’t enough to propel you into a new career of your dreams, I suspect the information will least serve to get enough juices flowing for you to evaluate if you are cut out for self-employment and if so, which roads you may want to go down and which you may wish to avoid. (I’ve learned that avoiding the wrong roads is twice as important as finding the right ones). Best of luck meeting the challenge of procuring income while at the same time being dedicated to your physical recovery.
Guest Post:
This is not word wrapped and pretty, but it’s my working hypothesis. Please contribute and or correct anything you deem correctible. Never mind the mispells, that will be dealt with. Just need your input? Forward on to friends or someone just learning they have an autistic child. I claim no intervention/idea/thought here is scientific, or tested or proven, but I do claim that this is what mothers gave me as their running hypothesis. Many researchers also helped me find some interesting tidbits.
Thanks
THE PERFECT STORM
by KATHY BLANCO
A “perfect storm” is an expression that describes an event where a rare combination of circumstances will aggravate a situation drastically.
The situation of the state of our nations health is eroding rapidly. When we study a toxin, is it never studied in context of the numerous toxins
with it, and it’s synergistic effect? Just as we know that mecury and aluminum combine to make their neurotoxins more potent, so is the perfect storm
which gathers upon us, with every breath we take, every food we ingest, ever infection we get, and every faith and hope, that the “authorities” that regulate our
health and well being, are asleep at the switch. This article may take you down a rabbit hole, that you may not want to read.
PATIENT ALLIANCE FOR NEUROENDOCRINEIMMUNE DISORDERS ORGANIZATION FOR RESEARCH AND ADVOCACY – 501 c 3 – ID # 550795076
C/O VIÑA + COMPANY, 255 Alhambra Circle, Suite 715, Coral Gables, Florida 33134
Phone: 305-441-1591 Volunteer Help line: 954-783-6771 – www.pandoranet.info
Introducing the NeuroEndocrineImmune (NEI) Center™
A patient-driven grassroots project of P.A.N.D.O.R.A. in partnership with
The Lanford Foundation-Lifelyme, Inc.
Science Innovation Chronic Illness Solutions
October 24, 2009
An Open Letter to the Lyme Disease Community Stakeholders
Re: Clarifying the goals of the NeuroEndocrineImmune (NEI) Center™ and the Inclusion of Lyme Disease
Dear Friend in the Lyme disease Advocacy Community: Read the full article
In my book, The Top 10 Lyme Disease Treatments, there is a chapter on the Marshall Protocol, which helped me tremendously in my recovery. Since the book was published, many people have said they feel the Marshall Protocol is not a valid treatment. So, I like to see other success stories similar to mine and I like to post them, to add validity and credibility to the Marshall Protocol. Here’s one that appeared today on a discussion group:
I just wanted to put out to the group that I have been using the Martial
Protocol now for 6 months. I don’t post much on here but if anyone wants to know
more I would be willing to answer, and I will try and keep and update on how I
am doing.
I like others have tried many things, spent alot of money. I came across the MP
about 2 yrs ago and wasn’t willing to try it. Due to nothing else working was
willing to give it a try with not much trust in it, but it is cheaper and I
needed to do something more. But to my surprise it is working.
I want to say I also rife on a regular basis and have great herxes from this. I
purchased the Doug Coil Machine not quiet a year ago. I herx for Mycoplasm,
Bartonella, and Lyme, I have played with times and how often I treat. I do one
every week for 30 min a time and rotate the 3, and this seems to be working. If
I do too much, my nervous system gets way out of wack.
The MP consists of taking a blood pressure pill called Olmetec every 6 hrs, and
a low dose of Minocycline and a diet consisting of no VIt D, you never get above
the dose of 100mg, you are on this for about a year, called phase one. Then
another small dose of ABX is introduced along with the above. This is called
phase 2.
I am amazed at where I am at today, I almost gave up in believing anything
worked for us lymies. I am able to have many more good days than bad, I still
have the bad, but they pass and are tolerable, I have had symtpoms that have
left that I look back on and say to myself, was it really that bad. I sleep now,
I may have the odd bad night. My headaches have cleared, I get the odd one, but
mainly stress brings them on. I actually have the energy to endulge in things I
enjoy. My depression use to be so dark at times, now I can handle it much better
before I spiral down and can’t see the light.
I have an amazing, passionate doctor who also has lyme and his wife. He was an
MD and saw his wife suffer, untill one day, he said enough. He is now an
Integretive Doctor and he and his wife are well. He has a very busy practice
and takes time on his own at home to answer patient emails. He makes very little
money on treating lyme patients in his practice, and this to me speaks huge
volumes about his passion for helping people.
Be Well, Keri
We’ve put a sample chapter from Connie Strasheim’s new book online – access it for free!
Access as a PDF: http://www.lymebook.com/insights-into-lyme-treatment-SAMPLE-CHAPTER.pdf
Access as a web page: http://www.lymebook.com/steven-harris
Learn more about the book: http://www.lymebook.com/insights-lyme-treatment-strasheim-book
You can now watch Dr. Lee Cowden discuss Nutramedix products on video. There is a separate video for each product. Click the links below to watch the videos:
ADRENAL SUPPORT
ALGAS METAL DETOX
AMANTILLA RELAX / SLEEP
AVEA MOOD
BABUNA SLEEP
BANDEROL MICROBIAL DEFENSE
BARBERRY MICROBIAL DEFENSE
BURBUR DETOX
CUMANDA MICROBIAL DEFENSE
ENULA MICROBIAL DEFENSE
EZOV EMOTIONAL BALANCE
MAGNESIUM MALATE CELLULAR SUPPORT
MELATONIN SLEEP
MORA MICROBIAL DEFENSE
NONI MICROBIAL DEFENSE
PARSLEY DETOX
PINELLA BRAIN / NERVE CLEANSE
QUINA MICROBIAL DEFENSE
SAMENTO (LIQUID) MICROBIAL DEFENSE
SAMENTO (CAPSULES) MICROBIAL DEFENSE
SERRAPEPTASE PROTEOLYTIC ENZYME
SPARGA SULPHUR DETOX
TAKUNA MICROBIAL DEFENSE
TRACE MINERALS RELAX
ZEOLITE METAL DETOX
Many people have asked why I believe in the Marshall Protocol. I’ve made a section in my book which answers this question free for public viewing for the first time. Feel free to read about my Marshall Protocol experience here:
http://www.lymebook.com/personal-marshall-protocol-experience-testimonial-success
To learn more about the book in which this section appears, visit http://www.defeatlyme.com, or add the book to your cart right now. You may also purchase just the Marshall Protocol chapter from the book, which contains the above section as well as other information on the Marshall Protocol:
Marshall Protocol Components
Correcting Vitamin D Levels
Reducing Exposure to Sunlight and Bright Lights
Avoiding Vitamin D Sources in Food and Supplements
Benicar Lowers Vitamin D Levels and Weakens the Bacteria
Antibiotics used in the Marshall Protocol
My experience with and commentary on the Modified Marshall Protocol
Trial and error vs. laboratory testing
Rife machines vs. the Marshall Protocol
A Final Word
Coffee is bad for you, right? Or at least, the caffeine is…….right? Not quite. In fact, this year, research has shown that coffee prevents parkinson’s disease, protects the liver, and boosts mental clarity. Furthermore, it is hypothesized that it isn’t just the caffeine in coffee that does this – decaf coffee has similar health effects. Some experts say that the coffee bean is the most nutritious and anti-oxidant packed food most americans eat on an average day.
I avoided coffee for years due to the stigma that it is “bad for me” but recently began drinking decaf coffee. On the last 10% of my Lyme recovery, I found that consuming decaf coffee has actually had tremendous benefit for me, and that is what inspired this blog post. I will probably avoid caffeinated coffee due to the potential health effects of caffeine, but if you are a Lyme sufferer who has been avoiding coffee, you might discuss with your doctor the possibility of giving some decaf coffee a try.
It has long been known that coffee enemas aid in detoxification. I don’t do enemas; or colonics; I simply can’t handle the thought of such procedures. However, perhaps drinking coffee has a similar detoxification effect? Having shoved massive quantities of antimicrobial herbs and drugs down my throat over the years, I can say with certainty that the effects of coffee (benefits) for me are not antimicrobial but are instead related to detoxification, especially of the liver. As a complement, I’m also beginning to take Milk thistle again starting today, perhaps my liver needs more help than I guessed it did.
In any case, maybe its time for us Lyme sufferers to give Coffee a second look!
But this is just my opinion. If you happen to be wondering how Lyme physicians are treating Lyme disease in their practices, now you can find out in our most recently published book, Insights Into Lyme Disease Treatment. You can learn more here.
Every year, there is a new buzzword in the Lyme disease community. For a year or two, everyone focuses on the buzzword, and researchers and physicians are in a frenzy to find new treatments for the buzzword. Supplement companies go banannas making money on the buzzword.
In 2009, the buzzword is “biofilms.” I’m not exactly sure how much biofilms really have to do with Lyme disease, and how much of it is just “the word of the year buzz.” I’ll leave that to the experts to decide. But, one of the interesting factors when it comes to biofilms, and the reason I’m even writing about it, is that this buzzword may be a clue as to why rife machines may work to treat Lyme disease. (What is a rife machine?) Read the full article
The ILADS (International Lyme and Associated Diseases) 2009 Conference is coming up! Dates are October 24-25, 2009, at the Gaylord National Resort, Washington DC. For more information and to register, visit the ILADS 2009 Conference Page. In this blog post, I’ll be passing along information from Barbara, the ILADS coordinator, and I’ll be updating the blog post frequently with her conference information updates, announcements, and tips.
LOOKING FOR INFORMATION ON HOW ILADS DOCTORS TREAT LYME DISEASE? Don’t miss the new, recently published book on how 13 Lyme Doctors Treat Lyme Disease!
That’s right, folks. I (Bryan Rosner) signed up for my first multi-level marketing company EVER. I have never signed up before because I haven’t believed in the product enough until now. Here’s my story with EIRO. Learn more about Eiro here.
I would not have signed up for this unless I believed that the product was valuable and helpful. It has helped me personally and some people I have known.
I cannot talk about the specific medical benefits of the product – that would be “making medical claims” but I did put together a little video on my perspective on Eiro.
NOTE: Eiro also has an energy drink. The product I’ve used and benefited from is just the plain Eiro juice, not the energy product.
SPONSORED POST
Purest Colloids is one of the most important, high-quality sources for colloidal silver, which many lyme sufferers benefit from (read more in my books at www.lymebook.com). Now, Purest Colloids has introduced a new product:
http://www.emediawire.com/releases/2009/6/prweb2580804.htm
Westampton, NJ (PRWEB) June 29, 2009 — New Jersey based, Purest Colloids, Inc., manufacturers of the world famous MesoSilver ®, introduces their newest product, MesoSilica®. MesoSilica is colloidal silica, 600 ppm (parts per million) with an average particle size of 6 nm (nanometers). Silica is an essential element in the body, especially in the bones as well as the connective tissue of the heart and blood vessels. Silica is necessary for healthy skin, cartilage, and tendons as well.
Recently news articles have been appearing with new evidence that Lyme is spreading through Canada:
MUST READ:
http://www.phac-aspc.gc.ca/publicat/ccdr-rmtc/08vol34/dr-rm3401a-eng.php
Others:
http://www.cmaj.ca/cgi/content/full/180/12/1221
http://www.allheadlinenews.com/articles/7015434469
To get help dealing with Lyme in Canada, visit the Canadian Lyme Disease Association:
Many of you know I think highly of Julie Anderson, ARNP. She has been the best health care provider I’ve worked with – flexible, intellegent, and accomodating. Here is her latest newsletter. You can learn more about her Seattle practice here – http://www.npjulie.com
In one of the cornerstone moments of Lyme disease politics over the last decade, the connecticut house of representatives passed a bill which allows physicians to diagnose chronic Lyme disease and treat it with long term antibiotics.
According to the Connecticut Post:
Thursday the state House of Representatives took a strong stand on the issue. In a 137-0 vote, members passed legislation to reassure doctors they will not face retaliation if they choose to diagnose chronic Lyme disease and treat it with long-term antibiotics.
Source: http://www.connpost.com/ci_12267343
This will hopefully be the first domino to fall in what will likely turn out to be a series of wins for chronic Lyme treating physicians and patients. I’ve written about this topic before and am glad to see this development!
Bryan Rosner
Nenah Sylver, PhD — internationally known educator and author in the fields of health and electromedicine — will be interviewed on the Patrick Timpone show on Thursday, 23 April, 2009 at 7:00 p.m. Central Daylight Time (5:00 p.m. Pacific Standard Time). On the show, Dr. Sylver will discuss Rife and other electromedicine technologies, as well as many different types of holistic health modalities that complement Rife therapy. These topics, and more, are discussed in her new 750+ page book, The Rife Handbook of Frequency Therapy with a Holistic Health Primer. If you listen to this show live, you can phone in and ask questions. However, those who miss the show can listen to it later on the website.
For radio show: One Radio Network.com
http://www.oneradionetwork.com/
512.894.3387
To order Dr. Nenah Sylver’s books:
www.nenahsylver.com or www.lymebook.com
SPONSORED POST
Learn more about MesoSilver here.
Mesosilver is 0.9999 pure silver in colloidal form, a true silver colloidMesosilver brand colloidal silver is the result of thousands of hours of research and development conducted at the
Colloidal Science Laboratory, Inc.
(CSL) over a period of several years. Purest Colloids, Inc. is the exclusive worldwide producer of MesoSilver. The resulting product, with a particle surface area many times greater than other products of this type, provides more usable silver to the body. To better understand how to compare colloidal silver products, see
How To Compare Colloidal Silver Products.
Many products are advertised as being colloidal silver, but in fact are mostly ionic silver solutions. A true silver colloid consists mostly of silver particles. Read What is Ionic Silver? to learn what other producers don’t want you know. Mesosilver has the highest percentage of it’s silver content in the form of sub-nanometer silver particles, not silver ions. To understand why the surface area of the silver particles is the key to colloidal effectiveness read Colloidal Silver Effectiveness.
Mesosilver is 0.9999 pure silver sub-nanometer sized particles suspended in pure deionized water. This combination is called colloidal silver. The silver nanoparticles in Mesosilver typically measure 0.65 nanometers or less in diameter, which is slightly larger than twice the diameter of an atom of silver. Each silver nanoparticle consists of approximately 9 silver atoms. Because these silver particles are so small and the concentration of particles is high, the result is a silver colloid with a very high particle surface area. In the world of chemistry, surface area determines how effectively a substance will react with its environment. Silver particles are non-toxic to humans.
Mesosilver combines small particle size and high particle concentration, a powerful combination of properties, to produce a colloidal silver product that has the highest particle surface area of any colloidal silver product ever tested. The Comparison Table shows how the particle surface area of Mesosilver compares to other products.
Some users experience a Herxheimer reaction when using colloidal silver.
Simply stated, it is a reaction that occurs when the body is detoxifying and the released toxins which can produce headaches, body ache, joint pain, sweating, general malaise, sore throat, nausea and/or flu-like symptoms.
More details here…
You should not use this product if you are allergic to silver!
Allergic reactions to silver, while not unheard of, are uncommon. Someone having an allergic reaction to silver would not be able to handle a metallic silver object such as silver jewelry without causing an allergic reaction. Those who are uncertain if they are allergic to silver should apply a few drops to the back of the hand to see if an allergic reaction results. If you do not see a reaction within 30 minutes you can be fairly certain that you are not allergic to silver.
The dosage for Mesosilver is typically between one teaspoon (5mL) and one tablespoon (15mL) daily to help maintain health. One to four tablespoons taken 4 times per day may be taken to help fortify the immune system when needed. Actual dosage will vary based on individual needs.
A 500 mL bottle will provide a one month supply when used at a dosage of one tablespoon per day
Unlike most colloidal silver products, Mesosilver is a clear amber colored liquid, looking like dark iced tea. It is the very high concentration of Mesosilver particles, not size or contamination, that gives Mesosilver its distinctive coloration.
Previously, it was thought that such a dark color indicated the presence of large silver particles, which is the case for colloidal silver produced by methods other than the mesoprocess. The small size of the silver particles is confirmed by the use of a state-of-the-art scientific instrument designed specifically for measuring such small particles. Produced by Malvern Instruments, Ltd. of the United Kingdom, the High Performance Particle Sizer (HPPS) is capable of measuring colloidal particles down to 0.6 nm diameter. The particle size report from the Malvern HPPS indicates that the size of the silver particles in Mesosilver is 0.65 nm in diameter, or only slightly more than two times the diameter of a silver atom making these particles the smallest silver particles of any product on the market.
Once the bottle is opened the color of Mesosilver may change to gray depending on the atmospheric pollutants found in the air. This color change does not indicate a problem with the product and is not cause for concern. The effectiveness is not effected. The color change to gray is commonly found in large cities like Boston, New York, Chicago, Los Angeles, Detroit, Denver, and in many cities in California.
The Lyme/Autism Book I wrote with Tami Duncan in 2008 was featured in the March, 2009 issue of Taste For Life Magazine. You can read the full article here.
Mar 23, 2009 Viral Genetics, Inc. a biotechnology company that discovers and develops immune-based therapies, announced it has successfully secured $75,000 in grant funding from the Turn The Corner Foundation for an upcoming Lyme disease study. Read the full article
Public Health Alert just published the latest article from BetterHealthGuy.com editor and founder Scott Forsgren. The article is an interview with Dr. Dietrich Klinghardt, MD, PhD. The piece is titled “Mcrobes, Toxins, and Unresolved Emotional Conflicts: A Unifying Theory”.
The article can be found here.
All too often we hear of people not getting well from Lyme. Here is a success story I just read:
With the recent release of Dr. Nordquist’s book, The Stealth Killer: Is Oral Spirochetosis the Missing Link in the Dental and Heart Disease Labyrinth?, taking care of the mouth is a focus of discussion lately. Many Lyme sufferers have dental issues. Normal mouth care usually isn’t enough. I’m trying to compile a list of other approaches. Leave a comment on this post if you have any tips. I believe that brushing with a mixture of hydrogen peroxide and baking soda (and maybe salt) is a good idea. Here are some other ideas I just got from an email:
“All health begins in the mouth, keeping down the CRP is important.
JAQ uses GSE (grapefruit seed extract) liquid under her toothpaste along
with peppermint oil (clenzology) and a homeopathic toothpaste (unicity)
for an amazingly clean mouth, no gum disease, and braces off last year,
cavity free at 14.”
Very important topic indeed
Lyme Disease Association of Australia Inc.
An official Lyme Disease Association of Australia has been launched. Our mission:
1. To raise awareness of Lyme disease and other tick-borne Illness in Australia.
2. Facilitate better testing and treatment.
3. Educate doctors and other health professionals about Lyme in Australia.
4. Use the media to alert the public about Lyme in Australia.
5. Collate personal stories which will bring pressure to bear on the Health Department who currently claim there is no Lyme in Australia.
6. Highlight the probability that Lyme may be the actual cause of many serious health problems including, Parkinson ’s disease, ALS, (Lou Gehrig’s Disease), Motor Neurone Disease, Multiple Sclerosis, Fibromyalgia and M.E./Chronic fatigue Syndrome.
7. Invite professional people to support us and join this association.
Our founder, Mualla Akinci is extremely capable and has the following qualifications:
A PhD in neuro-pharmacology, Masters in hematology and honors in Immunology and has a pharmacy practice in Redfern. She was a post doctoral fellow at the Garvan Institute of Medical Research and worked in collaboration with scientists at Walter and Eliza Hall Institute in Melbourne, and at the Peter McCallum Cancer institute. Prior to her husband contracting Lyme in 2007, he worked in the film industry and has many contacts in film and television.
We will enhance the work already done by T.A.G.S. and others. We believe that if we all pull together we can bring huge improvements to the current Lyme situation in Australia.
We invite all Australian Lyme patients, friends and family of Lyme patients, doctors and health professionals to join this wonderful group and add your voice to publicizing the reality of Lyme in Australia.
As a registered charity, there will be a small fee of perhaps $5 for pensioners and $10-15 per annum for those on regular incomes to cover our costs. We will also accept donations which will be tax deductable.
What we need.
1. Someone who can set up a webpage for the association.
2. A President.
3. Vice President.
4. Secretary.
5. Treasurer.
We welcome all suggestions and look forward to your comments. Please forward this email to other Lyme patients and Lyme groups.
Rosemary Trudeau.
www.au.groups.yahoo.com/group/LymeOz
Lymebook.com’s newest author, Bill Nordquist, will be speaking Thursday November 12, 2009, at the ACE meeting in November. Below is more information about this event. You can learn more about Dr. Nordquists new book here. Read the full article
I received this today from Dorothy Leland. If you live in California you might want to check out Calif. Lyme Disease Assocn. (CALDA) 2009 patient conference. I may attend if possible. Here’s the info. Get more information at http://www.lymedisease.org, 530.750.1832.
The California Lyme Disease Association presents “Lyme Patient Community Conference: GETTING HEALTHY AGAIN,” Saturday, April 18, 2009, 1-4:30 p.m. San Ramon Community Center, 12501 Alcosta Blvd, San Ramon, CA. Requested Donation: $40 for adults, $20 for teenagers. MAIN SESSION: Hear from some of California’s leading Lyme-literate doctors, including Dr. Ray Stricker, MD; Dr. Steven Harris, MD; Dr. Deborah Metzger, MD; and Dr. Tod Thoring, ND. SPECIAL TEEN SESSION: There will be a concurrent workshop for teenagers facilitated by Valerie Frankel, MFT. This will be a chance for teens to meet other teens dealing with Lyme, and to explore strategies for coping with the challenges that are unique to teenagers with chronic illness. Ages 13-19 only. Teen event will be limited to 20 participants. Sign-ups for both sessions will open March 2, 2009. Registration details will be announced closer to that time.
Julie Anderson is a Nurse Practitioner who helped me a ton during my Lyme recovery. I mention her in both my Lyme disease books, The Top 10 Lyme Disease Treatments and Lyme Disease and Rife Machines. She is located in Seattle. Below is her most recent newsletter. Here’s her contact info:
4757 36th Ave. S.
Seattle, WA 98118
206-760-9266 Read the full article
Dr. Nordquist, an implant dentist practicing in So. California, recently published the book “The Stealth Killer: Is Oral Spirochetosis the Missing Link in the Dental and Heart Disease Labyrinth”. Now you can read about all of Dr. Nordquist’s latest discoveries, including watching his latest videos, on Dr. Nordquist’s Reserach Blog. Read the full article
In February, 2009, Journal of the American Medical Association (JAMA) published a commentary by John D. Kraemer and Lawrence Gostin which I feel is off base. The main attribute that is incorrect is their assumption that ILADS political challenge to IDSA was based on political manuevering. There is a huge spectrum of science that proves the existence of chronic Lyme disease. The reason the IDSA guidelines are being challenged is that they are innaccurate, not that there is a political conflict of interest. You must pay to access the JAMA article however I did find a version (not sure if it is legal?) that someone posted on their website. http://www.mimosabridalaz.com/Science%20Politics%20and%20Values.pdf
When will this end.
Bryan
—–
Abstract:
Science, Politics, and Values
The Politicization of Professional Practice Guidelines
John D. Kraemer, JD, MPH; Lawrence O. Gostin, JD
JAMA. 2009;301(6):665-667.
The Infectious Diseases Society of America (IDSA) issued updated clinical practice guidelines in 2006 for the diagnosis and treatment of Lyme disease.1 Within days, the Connecticut attorney general launched an investigation, alleging IDSA had violated state antitrust law by recommending against the use of long-term antibiotics to treat “chronic Lyme disease (CLD),” a label applied by advocates to a variety of nonspecific symptoms for which frequently no evidence suggests the etiologic agent of Lyme disease is responsible. The IDSA was forced to settle the claim to avoid exorbitant litigation costs, even though the society’s guidelines were based on sound science. The case exemplifies the politicization of health policy, with elected officials advocating for health policies against the weight of scientific evidence.
The Antitrust Investigation of IDSA
Although untreated or inadequately treated Lyme disease can progress to cause neurological complications and arthritis, there is no evidence the… full text: http://www.mimosabridalaz.com/Science%20Politics%20and%20Values.pdf
Author Affiliations: O’Neill Institute for National and Global Health Law, Georgetown University, Washington, DC.
SPECIAL NEWS REPORT BY BRYAN ROSNER: For those readers who do not know, there is currently a controversy raging about whether or not chronic Lyme disease is a real medical condition. There is no question that acute Lyme disease is real. But heated debate enshrouds the endpoint of a Lyme disease infection. The question hinges on whether or not a standard, 10 day course of antibiotics can cure each and every case of the disease. Do lingering symptoms after treatment count as an ongoing infection, or something else – some remnant of the disease? Thousands of patients still experience symptoms after treatment. Thousands of sick people and their doctors believe in chronic Lyme disease; they have seen it, felt it, lived it. Researchers have observed it under the microscope. Hundreds of scientific studies prove the existence of chronic Lyme disease. But establishment medicine continues to deny this reality. Currently, the legal environment for Lyme-treating physicians is hostile, and physicians who prescribe long-term antibiotics for their sick patients face reprimand or even loss of their medical license. Read the full article
Some encouraging news: There is currently a one-day Lyme Legislative Seminar on the calendar, which will take place on March 28, 2009, at George Mason University, hosted by the National Capital Lyme and Tick-Borne Disease Association. You can view the agenda for the seminar here. Thankfully, there will be several people involved in the seminar who wield enough power to change the course of history, one of whom is Congressman Frank Wolf, (R-VA 10th District). Read the full article
This is a major step in the right direction. A new bill would allow long term antibiotic treatment for chronic Lyme disease. I’m not sure when or how it is being voted on but just to have a bill like this in existence…what a victory…read more… Read the full article
I met this doctor at 2008 ILADS conference and he is top notch. His blog is one of the very best sources of information I’ve ever seen in the Lyme community. Apparently he is teetering on the edge of the ILADS vs. IDSA debate and it has become a legal issue for him – he is being investigated by his state medical board.
I urge ALL OF YOU to support this doctor in whatever way you can, be it financially, politically, writing letters, or contacting relevant organizations and/or spreading the word.
We are living in dark, dark times. It almost feels like a bad dream – a nightmare. I hope very much that I live to see the day when Lyme doctors are vindicated.
Here’s the link:
It is with a sad heart that I go to sleep now.
Bryan Rosner
We all know that the IDSA has an irrational bent against the ILADS Lyme disease treatment guidelines. So, after the Connecticut Attorney General suied IDSA and required them to review their guidelines (which state that chronic Lyme disease is not a real medical condition), we’ve all been left wondering… will IDSA really give the guidelines an honest look, or will they just jump through the hoops to get millions of sick people off their back? You decide… Read the full article
The Lyme-induced autism foundation is having their 2009 conference in Scottsdale, AZ this year. Of particular note is that Dr. Joe Mercola will be speaking. Here are the details… Read the full article
The BioMed Publishing Group Information Independence Policy is now the primary guideline which we follow in regards to discussion of rife machines with our audience and readership, as well as future publications relating to the topic of rife machines. The policy also addresses medical advice in general, and advertising programs involving rife machine manufacturers or resellers.
For the purpose of this document, “BioMed Publishing Group” and “we” refers to Bryan Rosner and any other agents acting on behalf of Bryan Rosner or BioMed Publishing Group. Read the full article
For Immediate Release
January 13 2009
Film, Under the Eightball, Debuts
Independent film explores the origins Lyme disease.
What do you do when your sister is diagnosed with an incurable disease? Read the full article
If there is any doubt that the Lyme Disease world is in transition, this should make it absolutely clear. These two news items are lightyears apart yet sat right next to each other on my Google Lyme Disease News Alert that came by email today. Read the full article
I would like to take a poll: Of those reading this blog, how many of you have taken artemisinin for Babesia and related co-infections, and how many of you have herxed on it – and how badly? Furthermore, did it lead to any noticable improvement? Please reply by leaving a comment below…
Don’t miss our book on using Artemisinin to treat Lyme & Babesia, and don’t forget to browse our other Lyme disease books & DVDs.
In my book The Top 10 Lyme Disease Treatments, http://www.defeatlyme.com, I talk about Mangosteen as being one of the best supplements for Lyme disease for many reasons, including its powerful antibiotic charcteristics. However, I mention a product in the book, Xango, which I no longer believe is the best route to take. Here’s why. Read the full article
This is a pretty interesting newsletter from the Florida Lifelyme support / advocacy group, thought I would share it here.
